Senator Bill Cassidy (R-LA), the Ranking Member of the U.S. Senate Health, Education, Labor, and Pensions Committee, published on February 21, 2024, a white paper with various proposals to update privacy protections for health data. The white paper discusses how genetic data collected by direct-to-consumer companies is not subject to HIPAA and may be used beyond the original scope of the intended use when the sample was collected. In Part 1 of this blog series, we discuss the other sections of
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